The International FOP Association (IFOPA) has been strengthening its global connections through education, research sharing, and mentorship. These partnerships are now reflected directly in India’s on-ground efforts, where FOP Trust integrates global standards into local healthcare systems. Recent outreach to pediatricians and hospitals across Tamil Nadu and Karnataka echoes IFOPA’s commitment to early recognition and […]
During the week, FOP Trust coordinated two new online consultations with Amara Hospital under Dr. Vrisha Madhuri. Medication guidance, the FOP protocol, and family counseling were completed the same day. Both families expressed gratitude to FOP Trust for organizing timely expert consultations. Takeaway: Early diagnosis leads to early stability.By bridging hospital networks and digital access, […]
Rupam Kait’s journey began when unexplained stiffness led his parents to CMC Hospital Vellore. After doctors suspected FOP, FOP Trust India quickly arranged a video consultation with Dr. Vrisha Madhuri at Amara Hospital. Rupam’s diagnosis was confirmed, and his family received medication guidance and FOP protocol education. Meanwhile, Ivansa Pradeep from Haryana had been seen […]
From October 17 to 25, Selva Kumar Vellore led a busy week of field operations for FOP Trust India: Takeaway: Every referral letter and meeting creates one more path to early diagnosis.Selva’s efforts this week reflect FOP Trust’s core value—connection through consistent action. To learn more, visit: https://foptrust.org/For international resources, visit: https://www.ifopa.org/
On 25 October 2025, the Lions Club of Vellore hosted its World Polio Day program at Bramma Gnana Sangam. With support from FOP Trust, the event included a special FOP awareness segment to educate health professionals and the public about the rare disease. Pamphlets were released by Dr. Prakash Iyappan, Senior Orthopedic Surgeon, Tamil Nadu […]
Following the success of last week’s awareness drive, discussions continued between FOP Trust, the Lions Club of Vellore, and local youth groups to integrate FOP awareness into World Polio Day events. The collaboration emphasizes using existing community health networks to spread knowledge about FOP symptoms, early detection, and care pathways. Through these joint efforts, awareness […]
This week, Selva Kumar focused on backend coordination and field support. He reviewed consultation records, verified contact details of patients awaiting appointments, and updated the FOP database with the latest medical information. Selva also finalized documentation of the Memorandum of Understanding (MoU) with the Lions Club of Vellore, which now carries the organization’s official seal. […]
When Archisman from West Bengal experienced a sudden FOP flare-up, his family immediately contacted FOP Trust. Within hours, he was connected to an online consultation at Amara Hospital, where Dr. Vrisha Madhuri reviewed his condition and advised the family to coordinate with a local pediatrician for emergency care. Detailed instructions on the FOP protocol and […]
Accurate tracking of flare-ups and mobility changes is central to managing FOP. This week, FOP Trust emphasized the importance of consistent reporting and documentation—a key part of the national FOP database. Regular updates help doctors assess disease progression and adjust care plans faster. Recent online consultations guided by Dr. Vrisha Madhuri demonstrate how personalized review […]
The International FOP Association (IFOPA) continues to guide global rare disease communities with practical, patient-centered tools. In India, these resources have become part of daily care—from flare-up protocols to emergency cards and self-help guides. Families like Shraya’s in Nepal and Akshat’s in Rajasthan used IFOPA’s translated guidelines this month to manage flare-ups safely. These resources […]
