This week focused on prevention of flare-ups and fast management of new swelling cases across multiple states. 🔹 Mayeshree from Manipur had a follow-up after her pamidronate therapy three months ago. While she is doing well, Dr Vrisha advised a second pamidronate cycle as precaution to prevent possible flare-ups.Instructions and medication protocol were sent to […]
This week showcased the power of preventive care through the story of 10-year-old Mayeshree from Manipur. After receiving pamidronate infusion three months ago, her family attended a review consultation as planned. Even though she had no pain or swelling, Dr Vrisha advised a second treatment cycle to prevent future flare-ups before they begin. Blood calcium […]
This week, Selva Kumar played a major role in ensuring continuity of treatment for families in remote and distant locations. His responsibilities included:✔️ Arranging online consultations✔️ Sharing treatment protocols with local hospitals✔️ Coordinating pamidronate access for families outside Tamil Nadu✔️ Continuous communication with Amara Hospital’s medical team A major highlight was helping Arzaan from Nagpur […]
Beyond medical coordination, this week also supported public awareness and sensitization. 👮♂️ A special FOP Awareness Training Program for Police Personnel was conducted during their in-service training session. The session covered: The participation and interest from officers reinforced that awareness beyond the medical community is equally important in preventing avoidable harm.To learn more, visit: https://foptrust.org/For […]
Every treatment step this week — whether preventive or reactive — aligned closely with IFOPA’s international clinical care guidelines, especially regarding: 🔹 Timing of pamidronate post-flare🔹 Secondary pamidronate cycle for preventative care🔹 Monitoring calcium levels after infusion🔹 Review timeline after flare-up medication🔹 Educating local doctors for safe administration instead of risky general treatment The outcomes […]
This week brought reassuring news from families across India, reminding us that even small improvements matter. 💙 From the Families: These updates reflect the strength and resilience of FOP families, along with the power of informed care and timely support. To learn more, visit: https://foptrust.org/For international resources, visit: https://www.ifopa.org/
This was a productive week on the ground as outreach efforts focused on improving awareness among doctors and expanding referral networks. 🏥 Key Outreach Activities: Selva also shared that FOP Trust may participate again in the National Orthopedic Conference, as done last year, and potentially at a Pediatric Doctors’ Conference this year—both crucial platforms for […]
FOP Trust continues to rely on IFOPA’s global expertise to guide families through flare management, emergency care, and long-term support. 🌍 This Week’s Highlights: IFOPA’s resources remain a backbone in ensuring every family receives globally informed care, right here in India. To learn more, visit: https://foptrust.org/For international resources, visit: https://www.ifopa.org/
This week saw several important consultations and flare-up management cases from families across India.The medical team at Amara Hospital, led by Dr Vrisha Madhuri, ensured that every case was attended with urgency and precision. 🩺 Major Consultations & Treatment Updates: This week reaffirmed how rapid communication between families, FOP Trust, and Amara Hospital ensures timely […]
This month brought steady progress across consultations, diagnoses, and treatment coordination. From Shraya in Nepal to Ashik in Chennai, timely follow-ups ensured that flare-ups were managed quickly and safely. Dr. Vrisha Madhuri emphasized preventive care alongside treatment—urging the use of helmets, spirometry, and regular reviews to track mobility and lung health. Pamidronate therapy, prescribed in […]
